Journal of Happiness and Health

Almeida, M., Ramos, C., Maciel, L., Basto-Pereira, M., & Leal, I. (2022). Meaning in life, meaning-making and posttraumatic growth in cancer patients: Systematic review and meta-analysis. Frontiers in Psychology, 13. https://doi.org/10.3389/fpsyg.2022.995981

Andersen, A. H., Assing Hvidt, E., Huniche, L., Hvidt, N. C., & Roessler, K. K. (2021). Why we suffer? Existential challenges of patients with chronic illness: A Kierkegaardian inspired interpretative phenomenological analysis. Journal of Humanistic Psychology, 0(0). https://doi.org/10.1177/00221678211002439

Arat, S., Verschueren, P., De Langhe, E., Smith, V., Vanthuyne, M., Diya, L., Van den Heede, K., Blockmans, D., De Keyser, F., Houssiau, F. A., & Westhovens, R. (2012). The association of illness perceptions with physical and mental health in systemic sclerosis patients: An exploratory study. Musculoskeletal Care, 10(1), 18–28. https://doi.org/10.1002/msc.223

Bellin, D. L., DePace, N. L., Bulgarelli, R. J., Li, P., & Colombo, J. (2015). Excessive parasympathetic responses to sympathetic challenges: A treatable, hidden, dynamic autonomic imbalance. Journal of Traditional Chinese Medical Sciences, 2(1), 52–59. https://doi.org/10.1016/j.jtcms.2015.06.001

Bernard, M., Berchtold, A., Strasser, F., Gamondi, C., & Borasio, G. D. (2020). Meaning in life and quality of life: Palliative care patients versus the general population. BMJ Supportive & Palliative Care, 14(e3). https://doi.org/10.1136/bmjspcare-2020-002211

Bernard, M., Strasser, F., Gamondi, C., Braunschweig, G., Forster, M., Kaspers-Elekes, K., Walther Veri, S., Borasio, G. D., & SMILE consortium team (2017). Relationship between spirituality, meaning in life, psychological distress, wish for hastened death, and their influence on quality of life in palliative care patients. Journal of Pain and Symptom Management, 54(4), 514–522. https://doi.org/10.1016/j.jpainsymman.2017.07.019

Berglund, B., Pettersson, C., Pigg, M., & Kristiansson, P. (2015). Self-reported quality of life, anxiety and depression in individuals with Ehlers-Danlos syndrome (EDS): A questionnaire study. BMC Musculoskeletal Disorders, 16, 89. https://doi.org/10.1186/s12891-015-0549-7

Boris, J. R., Shadiack, E. C., 3rd, McCormick, E. M., MacMullen, L., George-Sankoh, I., & Falk, M. J. (2024). Long-term POTS outcomes survey: Diagnosis, therapy, and clinical outcomes. Journal of the American Heart Association, 13(14), e033485. https://doi.org/10.1161/JAHA.123.033485

Bourne, K. M., Hall, J., Stiles, L. E., Sheldon, R. S., Shibao, C. A., Okamoto, L. E., Garland, E. M., Gamboa, A. C., Peltier, A., Diedrich, A., Biaggioni, I., Robertson, D., & Raj, S. R. (2021). Symptom presentation and access to medical care in patients with postural orthostatic tachycardia syndrome: role of sex. CJC open, 3(12 Suppl), S44–S52. https://doi.org/10.1016/j.cjco.2021.08.014

Brassai, L., Piko, B. F., & Steger, M. F. (2011). Meaning in life: Is it a protective factor for adolescents' psychological health? International Journal of Behavioral Medicine, 18(1), 44–51. https://doi.org/10.1007/s12529-010-9089-6

Busija, L., Tan, J., & Sanders, K. M. (2017). Associations between illness duration and health-related quality of life in specified mental and physical chronic health conditions: Results from a population-based survey. Quality of Life Research, 26(10), 2671–2681. https://doi.org/10.1007/s11136-017-1592-7

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Colombo, J., Weintraub, M. I., Munoz, R., Verma, A., Ahmad, G., Kaczmarski, K., Santos, L., & DePace, N. L. (2022). Long Covid and the autonomic nervous system: The journey from dysautonomia to therapeutic neuro-modulation through the retrospective analysis of 152 patients. NeuroSci, 3(2), 300–310. https://doi.org/10.3390/neurosci3020021

Davis, H. E., McCorkell, L., Vogel, J. M., & Topol, E. J. (2023). Long covid: Major findings, mechanisms and recommendations. Nature Reviews Microbiology, 21(3), 133–146. https://doi.org/10.1038/s41579-022-00846-2

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DePace, N. L., & Colombo, J. (2022). Long-Covid Syndrome: A Multi-organ disorder. Cardiology: Open Access, 7(1). https://doi.org/10.33140/coa.07.01.07

deRoon-Cassini, T. A., de St Aubin, E., Valvano, A., Hastings, J., & Horn, P. (2009). Psychological well-being after spinal cord injury: Perception of loss and meaning making. Rehabilitation Psychology, 54(3), 306–314. https://doi.org/10.1037/a0016545

Dezutter J. Cognitive and affective aspects of religion in relation to mental health: An exploration in community and clinical samples. University of Leuven; 2010. Unpublished Doctoral Thesis.

Dezutter, J., Casalin, S., Wachholtz, A., Luyckx, K., Hekking, J., & Vandewiele, W. (2013). Meaning in life: An important factor for the psychological well-being of chronically ill patients? Rehabilitation Psychology, 58(4), 334–341. https://doi.org/10.1037/a0034393

Dezutter, J., Luyckx, K., & Wachholtz, A. (2015). Meaning in life in chronic pain patients over time: associations with pain experience and psychological well-being. Journal of Behavioral Medicine, 38(2), 384–396. https://doi.org/10.1007/s10865-014-9614-1

Dezutter, J., Waterman, A. S., Schwartz, S. J., Luyckx, K., Beyers, W., Meca, A., Kim, S. Y., Whitbourne, S. K., Zamboanga, B. L., Lee, R. M., Hardy, S. A., Forthun, L. F., Ritchie, R. A., Weisskirch, R. S., Brown, E. J., & Caraway, S. J. (2014). Meaning in life in emerging adulthood: A person-oriented approach. Journal of Personality, 82(1), 57–68. https://doi.org/10.1111/jopy.12033

Fang, C., Baz, S. A., Sheard, L., & Carpentieri, J. (2023). ‘I am just a shadow of who I used to be’—exploring existential loss of identity among people living with chronic conditions of Long Covid. Sociology of Health & Illness, 46(1), 59–77. https://doi.org/10.1111/1467-9566.13690

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Gensemer, C., Burks, R., Kautz, S., Judge, D. P., Lavallee, M., & Norris, R. A. (2021). Hypermobile Ehlers-Danlos syndromes: Complex phenotypes, challenging diagnoses, and poorly understood causes. Developmental dynamics : an official publication of the American Association of Anatomists, 250(3), 318–344. https://doi.org/10.1002/dvdy.220

Gordon, P. A., Feldman, D., Crose, R., Schoen, E., Griffing, G., & Jui, S. (2002). The role of religious beliefs in coping with chronic illness. Counseling and Values, 46(3), 159–160. https://doi.org/10.1163/2161007x-04603001

Hovaguimian A. (2023). Dysautonomia: Diagnosis and Management. Neurologic Clinics, 41(1), 193–213. https://doi.org/10.1016/j.ncl.2022.08.002

Ivey-Stephenson, A. Z., Crosby, A. E., Hoenig, J. M., Gyawali, S., Park-Lee, E., & Hedden, S. L. (2022). Suicidal thoughts and behaviors among adults aged ≥18 years — United States, 2015–2019. MMWR. Surveillance Summaries, 71(1), 1–19. https://doi.org/10.15585/mmwr.ss7101a1

Jiao, J., Vincent, A., Cha, S. S., Luedtke, C. A., & Oh, T. H. (2014). Relation of age with symptom severity and quality of life in patients with fibromyalgia. Mayo Clinic Proceedings, 89(2), 199–206. https://doi.org/10.1016/j.mayocp.2013.09.021

Lampert, R., Ickovics, J., Horwitz, R., & Lee, F. (2005). Depressed autonomic nervous system function in African Americans and individuals of lower social class: a potential mechanism of race- and class-related disparities in health outcomes. American Heart Journal, 150(1), 153–160. https://doi.org/10.1016/j.ahj.2004.08.008

Lieberwerth, M., & Niemeijer, A. (2024). Lost and changed meaning in life of people with Long Covid: a qualitative study. International Journal of Qualitative Studies on Health and Well-Being, 19(1), 2289668. https://doi.org/10.1080/17482631.2023.2289668

Lohkamp, L. N., Marathe, N., & Fehlings, M. G. (2022). Craniocervical instability in Ehlers-Danlos Syndrome- systematic review of diagnostic and surgical treatment criteria. Global Spine Journal, 12(8), 1862–1871. https://doi.org/10.1177/21925682211068520

Mallick, D., Goyal, L., Chourasia, P., Zapata, M. R., Yashi, K., & Surani, S. (2023). COVID-19 induced Postural Orthostatic Tachycardia Syndrome (POTS): A Review. Cureus, 15(3), e36955. https://doi.org/10.7759/cureus.36955

Mascaro, N., & Rosen, D. H. (2005). Existential meaning's role in the enhancement of hope and prevention of depressive symptoms. Journal of Personality, 73(4), 985–1013. https://doi.org/10.1111/j.1467-6494.2005.00336.x

Pederson, C. L., & Brook, J. B. (2017). Health-related quality of life and suicide risk in postural tachycardia syndrome. Clinical autonomic research: Official Journal of the Clinical Autonomic Research Society, 27(2), 75–81. https://doi.org/10.1007/s10286-017-0399-5

Pinquart, M., Silbereisen, R. K., & Fröhlich, C. (2009). Life goals and purpose in life in cancer patients. Supportive care in cancer : Official Journal of the Multinational Association of Supportive Care in Cancer, 17(3), 253–259. https://doi.org/10.1007/s00520-008-0450-0

Ruiz Maya, T., Fettig, V., Mehta, L., Gelb, B. D., & Kontorovich, A. R. (2021). Dysautonomia in hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders is associated with exercise intolerance and cardiac atrophy. American Journal of Medical Genetics. Part A, 185(12), 3754–3761. https://doi.org/10.1002/ajmg.a.62446

Rose, L. M., Zask, A., & Burton, L. J. (2016). Psychometric properties of the Meaning in Life Questionnaire (MLQ) in a sample of Australian adolescents. International Journal of Adolescence and Youth, 22(1), 68–77. https://doi.org/10.1080/02673843.2015.1124791

Shaw, B. H., Stiles, L. E., Bourne, K., Green, E. A., Shibao, C. A., Okamoto, L. E., Garland, E. M., Gamboa, A., Diedrich, A., Raj, V., Sheldon, R. S., Biaggioni, I., Robertson, D., & Raj, S. R. (2019). The face of postural tachycardia syndrome - insights from a large cross-sectional online community-based survey. Journal of Internal Medicine, 286(4), 438–448. https://doi.org/10.1111/joim.12895

Sherman, A. C., & Simonton, S. (2012). Effects of personal meaning among patients in primary and specialized care: associations with psychosocial and physical outcomes. Psychology & Health, 27(4), 475–490. https://doi.org/10.1080/08870446.2011.592983

Steger, M. F. (2009). “Meaning in life” in Oxford handbook of positive psychology. ed. S. J. Lopez. 2nd ed (Oxford, UK: Oxford University Press), 679–687.

Steger, M. F., Frazier, P., Oishi, S., & Kaler, M. (2006). The meaning in life questionnaire: Assessing the presence of and search for meaning in life. Journal of Counseling Psychology, 53(1), 80–93. https://doi.org/10.1037/0022-0167.53.1.80

Steger, M. F., Kashdan, T. B., Sullivan, B. A., & Lorentz, D. (2008). Understanding the search for meaning in life: personality, cognitive style, and the dynamic between seeking and experiencing meaning. Journal of Personality, 76(2), 199–228. https://doi.org/10.1111/j.1467-6494.2007.00484.x

Steger, M. F., Oishi, S., & Kashdan, T. B. (2009). Meaning in life across the life span: Levels and correlates of meaning in life from emerging adulthood to older adulthood. The Journal of Positive Psychology, 4(1), 43–52. https://doi.org/10.1080/17439760802303127

Steger, M. F., & Frazier, P. (2005). Meaning in life: one link in the chain from religiousness to well-being. Journal of Counseling Psychology, 52(4), 574–582. https://doi.org/10.1037/0022-0167.52.4.574

Theoharides, T. C., Twahir, A., & Kempuraj, D. (2024b). Mast cells in the autonomic nervous system and potential role in disorders with dysautonomia and neuroinflammation. Annals of Allergy, Asthma & Immunology, 132(4), 440–454. https://doi.org/10.1016/j.anai.2023.10.032

Thieben, M. J., Sandroni, P., Sletten, D. M., Benrud-Larson, L. M., Fealey, R. D., Vernino, S., Lennon, V. A., Shen, W. K., & Low, P. A. (2007). Postural orthostatic tachycardia syndrome: the Mayo clinic experience. Mayo Clinic proceedings, 82(3), 308–313. https://doi.org/10.4065/82.3.308

Wilski, M., Wnuk, M., Brola, W., Szcześniak, M., Żak, M., Sobolewski, P., Kapica-Topczewska, K., Tarasiuk, J., Czarnowska, A., Kułakowska, A., Zakrzewska-Pniewska, B., Bartosik-Psujek, H., Kubicka-Bączyk, K., Morawiec, N., Adamczyk-Sowa, M., Stepien, A., Jacek, Z., Ratajczak, A., Ratajczak, M., Szałachowski, R., … Potemkowski, A. (2024). Religious meaning system and life satisfaction: the mediating role of meaning in life among Polish people with multiple sclerosis. Frontiers in Psychiatry, 14, 1352021. https://doi.org/10.3389/fpsyt.2023.1352021

Vernino, S., & Stiles, L. E. (2018). Autoimmunity in postural orthostatic tachycardia syndrome: Current understanding. Autonomic Neuroscience, 215, 78–82. https://doi.org/10.1016/j.autneu.2018.04.005

Wirtz, M. R., Moekotte, J., Balvers, K., Admiraal, M. M., Pittet, J. F., Colombo, J., Wagener, B. M., Goslings, J. C., & Juffermans, N. (2020). Autonomic nervous system activity and the risk of nosocomial infection in critically ill patients with brain injury. Intensive Care Medicine Experimental, 8(1), 69. https://doi.org/10.1186/s40635-020-00359-

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